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Just Diagnosed - the Basics

Fast facts about ADPKD

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Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common genetic renal disorder. In the UK, it accounts for around 1 in 10 people on dialysis and 1 in 8 with a kidney transplant.

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I want to know more about ADPKD

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This booklet is about autosomal dominant polycystic kidney disease (ADPKD). It is intended as a general guide for people who have been diagnosed with ADPKD and their families and carers. It explains what causes ADPKD, how it is diagnosed and monitored, its symptoms and complications, and how the disease might progress.

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ADPKD in children

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This article is intended as a general guide for parents or carers who have children who are at risk of, or have been diagnosed with autosomal dominant polycystic kidney disease (ADPKD).

Find out here how ADPKD can affect children as well as how it is diagnosed, monitored and treated.

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PKD Charity is a Member of

  • Visit Ciliopathy Alliance website
  • Visit PKD International website
  • Visit EURORDIS website
  • Visit the Genetic Alliance UK website
  • Visit The Information Standard website
  • National Voices Website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website