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About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.

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0300 111 1234

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Welcome to the PKD Charity

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Latest News & Events

2,000th patient in 100,000 Genomes Project has ADPKD

ADPKD patient Christine Mather has become the 2,000th person in Greater Manchester to take part in the 100,000 Genomes Project, which is transforming the diagnosis and treatment of rare diseases.

Read more ...

Would you like to take part in the DRINK Study?

The DRINK study is looking to recruit patients in the UK with polycystic kidney disease (known as ADPKD or PKD) to take part in a research study to determine how much water to drink.  Participants will be randomly assigned to either a daily prescription of high water intake or to continue with their usual drinking practices.

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Spring Ball raises £2,000

March 2016

A Spring Ball held at Tern Hill Hall, Shropshire Saturday 5th March 2016 raised almost £2,000 for the PKD Charity.

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Latest Research

SONG Initiative

SONG - Standardised Outcomes in Nephrology - Initiative

The Standardised Outcomes in Nephrology (SONG) is an independent and global initiative that brings together patients, family members, caregivers, and health professionals in partnership to establish core outcome domains and outcome measures in chronic kidney disease (CKD) for use in clinical trials and other forms of research.

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Clinical research fellowship grant - Addenbrooke's Hospital

The PKD Charity has awarded £10,000 to Addenbrooke's Charitable Trust towards a clinical research fellowship.

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PhD studentship award - Royal Free Centre for Nephrology

The PKD Charity has awarded £32,259 over 3 years to UCL Royal Free Centre for Nephrology towards a joint PhD studentship.

The grant will help support a PhD student undertaking PKD research.

Latest Tweets

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • National Voices Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website