About Us

The PKD Charity was established in December 2000 by patients, professionals and members of families affected by PKD.

In 2015, the trustees agreed to incorporate the charity and the PKD Charity was re-registered with the Charity Commission (No 1160970). The assets and income of the original charitable trust (No 1085662) were transferred to the new charitable company on 27 May 2015.

Our Charitable Objects

To promote health and to relieve those persons suffering from or affected by polycystic kidney disease (PKD) with a view to improving their conditions of life, in particular but not exclusively by:

Funding research into determining the causes of PKD and into discovering treatments and a cure, with any useful results of such research being available to the public.
Promoting awareness of PKD through the production and publication of authoritative information for the general public and health professionals about the medical, healthcare and related aspects of PKD.
Organising patient, family and carer information, education and support events across the UK and offering personal support to patients and their families.

Board of Trustees

Ms Maureen Carson
Mrs Alison Carter
Mrs Edwina Graham
Mr Alan Greenberg (Chair)
Mr Raj Johal
Mr Sarbjit Johal
Ms Rebecca Murphy-Peers
Mr Nicholas Tracey
Mrs Christine Wallach

Research Advisory Board

Professor Pat Wilson (Chair)
Dr Anand Saggar (Vice chair)
Ms Sanela Becar
Dr Jill Norman
Dr Richard Sandford
Dr John Sayer
Dr Paul Winyard
Ms Sanela Becar

Patrons

Right Hon Sir Vincent Cable, MP
Mr Laurence Isaacson, CBE
Professor Albert Ong
Dr Richard Sandford
Professor Pat Wilson

ARPKD Sub-committee

Mrs Claire Rosendale (Chair)
Mrs Allison Garbutt
Mrs Jane Lapthorne
Mrs Zara Perry
Mrs Nancy Rattner

Administration and Fundraising

Ms Tess Harris (Chief Executive)
Ms Esther Wright (Fundraising Manager)
Ms Esther O'Brien (Support Services Co-ordinator)

Office

Phone: 020 7387 0543
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Address: 91 Royal College Street, London NW1 0SE