0300 111 1234

About Us

The PKD Charity was established in December 2000 by patients, professionals and members of families affected by PKD.

In 2015, the trustees agreed to incorporate the charity and the PKD Charity was re-registered with the Charity Commission (No 1160970). The assets and income of the original charitable trust (No 1085662) were transferred to the new charitable company on 27 May 2015.

Our Charitable Objects

To promote health and to relieve those persons suffering from or affected by polycystic kidney disease (PKD) with a view to improving their conditions of life, in particular but not exclusively by:

  • Funding research into determining the causes of PKD and into discovering treatments and a cure, with any useful results of such research being available to the public.
  • Promoting awareness of PKD through the production and publication of authoritative information for the general public and health professionals about the medical, healthcare and related aspects of PKD.
  • Organising patient, family and carer information, education and support events across the UK and offering personal support to patients and their families.

Board of Trustees

  • Ms Maureen Carson
  • Mrs Alison Carter
  • Mr Alan Greenberg (Chair)
  • Mr Raj Johal
  • Mr Sarbjit Johal
  • Mrs Rebecca Murphy-Peers
  • Ms Harriet Rimbault
  • Mr Adrian Tinsley
  • Mr Nicholas Tracey
  • Professor Patricia Wilson

Research Advisory Board

  • Professor Patricia Wilson (Chair)
  • Dr Anand Saggar (Vice chair)
  • Ms Sanela Becar
  • Dr Jill Norman
  • Dr Richard Sandford
  • Dr John Sayer
  • Dr Paul Winyard
  • Ms Sanela Becar


  • Right Hon Sir Vincent Cable, MP
  • Professor Albert Ong
  • Dr Richard Sandford
  • Professor Pat Wilson

ARPKD Sub-committee

  • Mrs Claire Rosendale (Chair)
  • Mrs Allison Garbutt
  • Mrs Jane Lapthorne
  • Mrs Zara Perry
  • Mrs Nancy Rattner

Administration and Fundraising

  • Ms Tess Harris (Chief Executive)
  • Ms Kelly Oakes (Fundraising Manager)
  • Ms Esther O'Brien (Support Services Co-ordinator)


Phone: 020 7387 0543
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Address: 91 Royal College Street, London NW1 0SE

Latest Tweets

RT @VicsWilliamson: Just short of 3 years..and FINALLY had some numbers on my back again today 🤩Thanks to everyone who has helped me so far…

PKD Charity UK PKD Charity UK

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website