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Show Your Rare on Rare Disease Day 28 February 2018

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On Rare Disease Day, we want to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' and families' lives.

Autosomal Recessive Polycystic Kidney Disease (ARPKD) is a rare disease affecting an estimated 2000 babies, children and adults in the UK. Rare Disease Day 2018 is an ideal opportunity to raise awareness of ARPKD. By joining forces, globally, we can give hope to everyone living with and affected by ARPKD.

How to take part and help raise awareness of ARPKD

Take part in an interactive face paint social media campaign to raise awareness of rare diseases and show your support for the rare disease community! Show your rare. Show you care.

Take part in the #ShowYourRare campaign during the entire month of February 2018.

It’s simple! Post an image or selfie on any social media channel with your face painted and include the hashtags #ShowYourRare, #MyRare or #RareDiseaseDay. Share an image on your own or with your friends, family or colleagues!

Share our video of families talking about ARPKD.

Share the official Rare Disease Day video.

Find out more about ARPKD.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website