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Consultations & Surveys

Below, we present opportunities for you to be involved in research via consultations and surveys. We always carefully check that all studies and surveys are run by reputable organisations and are for patient benefit only, not commercial use.

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RT @actiononsalt: In the UK we eat more than the recommended max of 6g salt per day. Most of that salt isn't from salt we add at the table/…

PKD Charity UK PKD Charity UK

RT @YincentTse: Was looking for a medication app for my patients, found #NHS has approved apps. This one can record liquid medication and c…

PKD Charity UK PKD Charity UK

RT @joostphdrenth: Press conference on theraperic options for rare liver diseases . Highlighting “PS-192 Lanreotide reduces liver growth i…

PKD Charity UK PKD Charity UK

RT @actiononsalt: In the UK we eat more than the recommended max of 6g salt per day. Most of that salt isn't from salt we add at the table/…

by PKD Charity UK

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website