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Hello Wales 👋 Only 1 sleep to go until the PKD Zip Line & we can’t wait to see our #PKDSuperstars zooming through t… https://t.co/Bnujk7VOKM

RT @blondeinnorfolk: This is my disease guys, bit of fun to raise funds 🎈 https://t.co/Wh5BxY77b1

Have you got your #PKDballoon yet? 🎈🌎 Every balloon bought raises vital awareness, funds research & offers support… https://t.co/DsO4HRpSb3

RT @rarediseaseuk: A new paper by @Orphanet, Orphanet Ireland and @eurordis has been published which is a robust analysis of the global pre…

Do something Amazing this Autumn and sign up to London Landmarks Half! 👊 General entry's now sold out 😱 but you can… https://t.co/x4v0gmjbl2

Hello Wales 👋 Only 1 sleep to go until the PKD Zip Line & we can’t wait to see our #PKDSuperstars zooming through t… https://t.co/Bnujk7VOKM