Supporting you
PKD Support Groups
For companionship and understanding, join a local or virtual support group. Owing to COVID-19, some meetings are still held on Zoom, whilst others are face-to-face.
Facebook groups
Looking for a friendly and private place to connect and share with others like you?
PKD Helpline
Need to speak with someone in person? Find about our confidential helpline and other ways to get in touch.
Educational events
Come to a free educational event. Open to all ADPKD and ARPKD patients, families and carers.
Financial advice
We know that many PKD patients, their families or carers face financial difficulties. Whether you can claim benefits or get grants will depend on many factors - such as your income, savings, living costs, stage of kidney disease or disabilities.
Insurance
It can be difficult to find affordable insurance if you have polycystic kidney disease (PKD). However, there are a number of specialist firms who offer all types of insurance to those with pre-existing conditions such as PKD - but be prepared to pay higher premiums because of the higher risk of claims.
PKD App
We've created a new, free, self-help PKD App to inform and educate people who are newly diagnosed or at early stages of autosomal dominant polycystic kidney disease (ADPKD).
PKD Exercise Programme
Exercise programme for everyone living with PKD. Build strength, knowledge and confidence through a progressive exercise and renal rehab programme.