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About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.

SUPPORT LINE

0300 111 1234

Welcome to the PKD Charity

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Have your say on changing Organ and Tissue Donation to an 'Opt-out' System

Kidneys

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The UK government plans to change organ and tissue donation to an 'opt-out' system. They want to know what you think about this and how the new system will work.

They have launched a consultation, which is open until 6 March. Please visit the Department of Health website via the link below to complete the questionnaire. Be prepared to spend about 15 to 20 minutes on this. As well as general questions about you, there are 9 questions which require thoughtful answers.

https://engage.dh.gov.uk/organdonation/13-2/

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Latest News & Events

World Kidney Day 8 March 2018

Help us unite with one powerful voice on World Kidney Day, Thursday 8 March, 2018 by organising an activity or event to draw public attention to kidney health. This year's theme is 'Kidney Disease and Women's Health'.

Read more ...

Have your say on changing Organ and Tissue Donation to an 'Opt-out' System

The UK government plans to change organ and tissue donation to an 'opt-out' system. They want to know what you think about this and how the new system will work.

They have launched a consultation, which is open until 6 March. Please visit the Department of Health website via the link below to complete the questionnaire. Be prepared to spend about 15 to 20 minutes on this. As well as general questions about you, there are 9 questions which require thoughtful answers.

https://engage.dh.gov.uk/organdonation/13-2/

Read more ...

2,000th patient in 100,000 Genomes Project has ADPKD

ADPKD patient Christine Mather has become the 2,000th person in Greater Manchester to take part in the 100,000 Genomes Project, which is transforming the diagnosis and treatment of rare diseases.

Read more ...

Latest Research

SONG Initiative

SONG - Standardised Outcomes in Nephrology - Initiative

The Standardised Outcomes in Nephrology (SONG) is an independent and global initiative that brings together patients, family members, caregivers, and health professionals in partnership to establish core outcome domains and outcome measures in chronic kidney disease (CKD) for use in clinical trials and other forms of research.

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Grant to investigate blood pressure in children and young people with ADPKD

The PKD Charity has awarded £10,000 to UCL Institute of Child Health/Great Ormond St Hospital for a study investigating the optimal bood pressure level in children and young people with ADPKD (Autosomal Dominant Polycystic Kidney Disease).

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Clinical research fellowship grant - Addenbrooke's Hospital

The PKD Charity has awarded £10,000 to Addenbrooke's Charitable Trust towards a clinical research fellowship.

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Latest Tweets

RT @myEvolPapers: The prevalence of autosomal dominant polycystic kidney disease (ADPKD): A meta-analysis of European literature and preval…

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RT @myEvolPapers: The prevalence of autosomal dominant polycystic kidney disease (ADPKD): A meta-analysis of European literature and preval…

by PKD Charity UK

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • National Voices Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website