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The Voice of PKD


Supporting people affected by polycystic kidney disease, raising awareness and funding research

The Voice of PKD

Supporting people affected by polycystic kidney disease, raising awareness and funding research

About PKD

Polycystic Kidney Disease or PKD is a range of life-threatening inherited conditions that can cause kidney failure and affect other organs

Learn about ADPKD or ARPKD

About PKD

Polycystic Kidney Disease or PKD is a range of life-threatening inherited conditions that can cause kidney failure and affect other organs

Learn about ADPKD or ARPKD

Get Support

We want everyone affected by PKD to live life to the full by providing the help, information and support needed at every stage. 

Find out how to get support

Get Support

We want everyone affected by PKD to live life to the full by providing the help, information and support needed at every stage. 

Find out how to get support

PKD research

Research is the only way to stop the progression of PKD and transform the lives of those affected today and in the future.

Read more about PKD research

PKD research

Research is the only way to stop the progression of PKD and transform the lives of those affected today and in the future.

Read more about PKD research

What's happening in PKD research?

What's happening in PKD research?

07 September 2026
Research into polycystic kidney disease (PKD) is moving faster than ever. Scientists, doctors and o…
Could gene therapy help children with ARPKD in the future?

Could gene therapy help children with ARPKD in the future?

01 September 2026
Summary Gene therapy is a new way to treat diseases caused by changes in our genes. It works by gi…
Why does Polycystic Liver Disease affect people with PKD differently?

Why does Polycystic Liver Disease affect people with PKD differently?

26 August 2026
Many people with ADPKD also develop polycystic liver disease (PLD). This is where cysts grow in the…
Remembering Maurice Slapak CBE | 1930-2026

Remembering Maurice Slapak CBE | 1930-2026

12 August 2026
We are saddened to hear of the death of Dr Maurice Slapak CBE, the pioneering transplant surgeon, f…
PKD Partnership announces £812,000 in research and training awards

PKD Partnership announces £812,000 in research and training awards

11 August 2026
Last summer we told you about an exciting milestone, the launch of the PKD Partnership, our collabo…
Transforming community voices into national action 

Transforming community voices into national action 

07 August 2026
Progress, priorities and next steps. For several months, the kidney community has been campaigning…
PKD Awareness Week: Together, We Can Build Understanding

PKD Awareness Week: Together, We Can Build Understanding

24 July 2026
Join us from 4–11 September as we raise awareness of polycystic kidney disease (PKD) By sharing fa…
New horizons for PKD research

New horizons for PKD research

17 July 2026
The recent New Horizons in Polycystic Kidney Disease (PKD) event brought together PKD researchers a…
New Government framework highlights the vital link between heart and kidney health

New Government framework highlights the vital link between heart and kidney health

08 July 2026
This week, the Government published the Cardiovascular disease (CVD) modern service framework (MSF)…
The hidden impact of salt on kidney health and PKD

The hidden impact of salt on kidney health and PKD

13 May 2026
How often do we hear that too much salt is bad for PKD, but why is it such a concern? For people l…
ANN UK Joins UK Kidney Association: A Stronger Future for Kidney Care

ANN UK Joins UK Kidney Association: A Stronger Future for Kidney Care

25 March 2026
The UK kidney community is set to benefit from a major development: the Association of Nephrology N…
Rare but Not Alone: Understanding Rare and Inherited Kidney Diseases

Rare but Not Alone: Understanding Rare and Inherited Kidney Diseases

24 February 2026
What is a Rare Disease?  Every year, Rare Disease Day raises awareness of the 300 million people w…

Help us be the change

Since 2000, PKD Charity has been at the forefront of everything related to PKD. We’ve funded vital research, built a strong network of community support groups, and been the voice of the PKD community.

If you’d like to get involved, and help to raise funds for PKD Charity, there are so many ways to help:

Follow the links to discover how you can make a difference.

Help us be the change

Since 2000, PKD Charity has been at the forefront of everything related to PKD. We’ve funded vital research, built a strong network of community support groups, and been the voice of the PKD community.

If you’d like to get involved, and help to raise funds for PKD Charity, there are so many ways to help:

Follow the links to discover how you can make a difference.

Feedback

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