About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.


0300 111 1234


Staying physically and mentally active during the COVID-19 lock-down

As we're instructed to stay at home in the latest, and unprecedented measure by the Government to protect us from coronavirus (COVID-19), taking care of our physical and mental wellbeing is more important than ever. Understandably it could be a boring, frustrating time that could lead to a low mood and increased anxiety.

MarTech Tracker run their first company half marathon for PKD Charity!

On 29th March, Suzy Dunsford, Tim Nagle  and Emma Laing from MarTech Tracker will be taking part in their first company half marathon - the London Landmarks Half Marathon for PKD Charity.

James Sandifier's story

On 25th January James Sandifier is organising a 10k Run in Bushy Park as a tribute to his late Dad and in support for his brothers for PKD Charity.

Here, James tells us what prompted him to take on this challenge:

Taylor Richards - ARPKD PhD student

I am excited to have been awarded a PhD studentship, co-funded by the PKD charity and I can’t wait to start working on this 3-year project on the ‘Molecular Mechanisms of the Fibrocystin-ATMIN interactions in Autosomal Recessive Polycystic Kidney Disease (ARPKD)’.

Philippa takes on her first Marathon for PKD

On 8th April Philippa Harpham is running her first ever marathon and it’s all for the PKD Charity.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website