About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.


0300 111 1234


In Sickness And In Health

As we all rally to raise awareness of kidneys and kidney health for World Kidney Day, and Salt Awareness this week, we hear from one devoted husband who gave the BIGGEST gift of all to transform his wife’s life.

Introducing Sophia

PKD Charity would like to announce a new starter, Sophia Rapley! Sophia Rapley will be covering Madeleine Martin’s maternity cover as our Community and Events Fundraising Manager.

Volunteer Stories – Annie Smart

Our volunteers are crucial in helping us change lives. The roles are varied – from organising and hosting Meetups, volunteering at our Information Days, supporting our online communities and much more; they provide dedicated support to the PKD Community across the UK and we are so grateful for their tremendous support.

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website
  • KPIN