About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.


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Staying physically and mentally active during the COVID-19 lock-down

Updated 17 May 2020.

It's 7 weeks since the Government implemented its unprecedented steps to stop the spread of coronavirus (COVID-19). Life in the UK - not to mention the world - has been transformed in ways we could never have imagined.

MarTech Tracker run their first company half marathon for PKD Charity!

On 29th March, Suzy Dunsford, Tim Nagle  and Emma Laing from MarTech Tracker will be taking part in their first company half marathon - the London Landmarks Half Marathon for PKD Charity.

James Sandifier's story

On 25th January James Sandifier is organising a 10k Run in Bushy Park as a tribute to his late Dad and in support for his brothers for PKD Charity.

Here, James tells us what prompted him to take on this challenge:

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website