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The following refers to insurance in the UK only. You must declare that you have PKD if you are asked. Insurers may or will refuse to payout otherwise, or may cancel your policy and keep your premiums.

UK Insurance Companies

For every policy sold, some firms will give a donation directly to The PKD Charity at no additional cost to you. These firms already work with a number of medical charities on the same basis. But please note that we are not endorsing them as an exclusive providers of cover.

We will add to the list over time.

Please note however that the PKD Charity does not and cannot recommend any insurer or financial services provider.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website