Children with ADPKD

This section provides information about how ADPKD affects children, including early signs, diagnosis, and emotional support. You’ll find practical resources to help parents and carers understand the condition and support their child with confidence.

To find out more about the many ways we offer support for those affected by PKD, please see our Get Help page.

A girl of around 8-10 years smiles gently and looks down. She has on a stethoscope, in front of her we see the back of the head of a woman who appears to be communicating with the girl

Symptoms and testing in children

Learn about the signs of ADPKD in children and how the condition is diagnosed, including when testing may be recommended. This resource helps you recognise early indicators and understand the testing process.

Symptoms and testing in children

A woman and child sit on a sofa holding hands. The woman seems to be talking to the girl. To the left of the girl on the sofa is a white stuffed toy.

Talking to your child about ADPKD

Learn how to talk to your child about ADPKD in an honest, age-appropriate way. This resource helps you support their understanding while building reassurance and trust.

Talking to your child about ADPKD

Helpline

0300 111 1234

Helpline

0300 111 1234

Children with ADPKD

Symptoms and testing in children

Talking to your child about ADPKD

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