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Are You PKD Aware?

pkd voices logo right 285Although Polycystic kidney Disease (PKD) causes pain and suffering to millions around the globe  - with the first case dating as far back to the death of the King of Poland in 1586 - awareness and therefore understanding of the disease is still very low. We want to change that.

PKD Voices features the tragic as well as triumphant stories of those who live with PKD: men, women, and children, each with a unique experience to share. We hope you’ll get involved in helping to spread the word. Read and share, and if you’ve a story to tell please do get in touch This email address is being protected from spambots. You need JavaScript enabled to view it..

Mark Mears

Mark Mears

User Rating: 5 / 5

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Meet Mark, transplant recipient, PKD Charity fundraiser and volunteer, who discovered a love of running that not only gave him a new lease of life but also led to him becoming a British Transplant Games medalist.

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Pat Wilson

Pat Wilson

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Pat Wilson is an Honorary Professor at University College, London (UCL) in the Department of Renal Medicine. She also chairs the PKD Charity Research Advisory Board and recently became a trustee of PKD Charity.

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Claire Pullinger

Claire Pullinger

User Rating: 5 / 5

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It’s not every day that a trip to the dentist leads to a diagnosis of PKD. But this is exactly what happened to Claire Pullinger, who’d expected nothing more than the removal of amalgam fillings.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website
  • KPIN