This year, we’re taking Team PKD to new heights - 1,085 metres to be exact.
In the early hours of May 31and June 7 2026, guided by experienced mountain leaders, we will ascend Llanberis Path to watch the sun rise over the breathtaking Welsh countryside.
Climbing Snowdon in the daylight is memorable, but doing it under the stars, with the moon lighting your path, transforms it into something truly extraordinary. This night-time summit is an experience you’ll remember for a lifetime.
📅 When: May 31 & June 7, 2026 📍 Where: Llanberis Pass 💷 Registration: £30 (payable to Travel and Trek) 🎯 Fundraising Target: £350
For further details and to sign up for this incredible challenge, get in touch with us today and secure your place on the team.
Or do you have ADPKD and also have a child aged 12-17 years?
If yes, you are invited to participate in a research study taking place at Evelina London Children’s Hospital, and Royal Manchester Children’s Hospital, investigating blood pressure in children at risk of ADPKD.
Professor Manish Sinha (Consultant Paediatric Nephrologist) is leading the study in London, and Dr Dean Wallace (Consultant Paediatric Nephrologist) is leading the study in Manchester.
The aim of this study is to measure blood pressure and look at the potential effect of this on the health of the heart, blood tubes (arteries) and other organs.
As part of this study, we will:
Do an MRI scan of the kidneys and heart
Assess blood pressure using several techniques
Check for ADPKD by a genetic test
This will most commonly require one visit to the hospital. We will cover some travel expenses for you to visit your chosen study site.
Why Is This Important?
One of the earliest signs of ADPKD is high blood pressure, which can appear even in childhood. If left untreated, high blood pressure can speed up kidney damage and place extra strain on the heart and other organs.
The early detection and managementof high blood pressure is a simple but crucial step towards protecting long-term health.
Meet The Principal Investigators
ProfessorManish Sinha, Chief Investigator for the HIYA-PKD study, is a Consultant Paediatric Nephrologist at Evelina London Children’s Hospital with over 20 years’ experience caring for children with kidney conditions.
A leading expert in autosomal dominant and recessive polycystic kidney disease (ADPKD and ARPKD), Professor Sinha also holds a PhD from King’s College London focused on hypertension and cardiovascular health in young people with kidney disease.
In this video, he shares why the HIYA-PKD study is so important for improving understanding and care for children and young people at risk of ADPKD.
Dr Dean Wallace is a Consultant Paediatric Nephrologist and principle Investigator for the Manchester site of Hiya-PKD. He has over a decade of experience in managing children with kidney conditions and specialises in the areas of dialysis, hypertension, tubulopathies and research trials.
The Hiya-PKD study combines his interests in the cardiovascular consequences of types of chronic kidney diseases with his passion for conducting high impact research trials and producing high quality evidence for children.
Take Part in the Study
We’d love for you to be part of our research. If you’re interested, simply click the link below to complete a short survey:
If you would like to speak to us about what support we can offer you or a loved one, please visit PKD Support or contact us today and speak to a member of our team.
Join us in celebrating PKD Charity’s monumental 25th anniversary! This is a special opportunity to honour the people who have made a difference in your journey - whether it's a dedicated medical professional, a generous donor, a donor’s family, or the memory of a loved one.
Together, let’s fill our Tree of Celebration with color and gratitude as we recognize the incredible individuals who have shaped our community.
We are truly grateful for your support of PKD Charity. Your generosity and kindness help us continue our vital work supporting individuals and families affected by polycystic kidney disease.
We all wish you lots of luck and we hope that you win the main prize of £25,000! No matter the outcome, you are already making a huge difference to us and the PKD Community that we support, and we can’t thank you enough.
If you'd like to stay updated on our latest news, inspiring stories, and ways to get involved, we’d love for you to sign up for our E-newsletter here. That way, you'll never miss an update on the impact of your support.
Once again, thank you for being a part of our PKD community. Your support means the world to us!
I want to personally extend my thanks for your generous donation. Your support means the world to us and to the entire PKD community.
Because of your generosity, we can continue to fund vital research, support members of our community who need it the most, and advocate for those affected by PKD. Thank you for being an essential part of our story. Your kindness and commitment help us to keep pushing forward, and we look forward to sharing with you the progress we make together.
So that you can keep up to date with our latest news, updates, and ways to get involved, we invite you to sign up for our mailing list. Click the link and stay connected and be the first to hear about the difference you’re helping to make.
Thank you sincerely for your generous donation to the Tess Harris Fellowship Fund. Your support is a meaningful tribute to Tess’s remarkable life and the lasting legacy she created.
Tess devoted her life to improving research, care and outcomes for people affected by PKD. Her leadership, compassion and determination shaped the charity we are today, and her influence can be felt in the progress made, the community strengthened, and the hope she fostered. She worked tirelessly to ensure that no one faced PKD alone, and inspired countless individuals with her commitment to creating a better future.
Your donation will help empower researchers to push forward vital work in PKD treatment and understanding, progress we know Tess would have been immensely proud of. Through your generosity, her legacy will continue to inspire breakthroughs, uplift the community she championed, and bring hope to those living with PKD.
Last year, we had an idea, a vision. All across the country, people wearing their PKD T-shirts would come together at 9 o’clock on September 6 to take part in a 5K to celebrate the end of PKD Awareness week. Although we couldn’t all be in the same place, we could all be doing the same thing at the same time.
And it was an incredible success!
We had over 120 people taking part across 49 locations, many of them at local parkruns, from Friockheim Park near Dundee to Bromham’s near Exeter, and even across the water in Ireland at Ormeau in Belfast.
The event gave participants the chance to talk about PKD, raise awareness of the condition, and, even better, meet others who were also taking part. Thanks to the matching T-shirts, it was easy to spot fellow participants and say hi!
Thank you to everyone who took part by walking, running, or cheering from the sideline.
Wall of fame 2025
Here are just some of the many people who took part in the PKD Fun 5k.
*PKD has no official affiliation with parkrun, and while their name is mentioned, this is not a collaboration.
Back again in 2026, the PKD Fun 5k took place on Saturday, 5 September. Once again, we have been excited to see the number of people taking part and even happier that participants, happened across other PKD community members.
A big thank you and congratulations to everyone who took part, whether you ran a PB, enjoyed a trot and a chat or finished with the tail walker, the important part was getting out there and doing it.
Wall of fame 2026
These are just some of the people who headed out to take part in the PKD Fun 5k 2026
*PKD has no official affiliation with parkrun, and while their name is mentioned, this is not a collaboration.
We welcome feedback on the information provided on this webpage. If you have any feedback regarding the information provided on this webpage, please complete the Feedback Form
Dr Dean Wallace is a Consultant Paediatric Nephrologist and principle Investigator for the Manchester site of Hiya-PKD. He has over a decade of experience in managing children with kidney conditions and specialises in the areas of dialysis, hypertension, tubulopathies and research trials. 
