Share your PKD Story
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This section focuses on the day-to-day experience of living with ADPKD, including physical, emotional, and practical aspects. You’ll find guidance and support to help you manage your condition and maintain your quality of life.
To find out more about the many ways we offer support for those affected by PKD, please see our Get Help page.
Diet and lifestyle choices can play an important role in managing ADPKD. This resource explains practical steps to support kidney health in everyday life.
Living well with ADPKD involves balancing your health, wellbeing, and daily activities. This resource offers guidance to help you maintain a good quality of life.
Preparing for appointments can help you get the most out of your care. This resource offers practical tips to help you feel informed and confident when speaking to healthcare professionals.
ADPKD can raise questions around pregnancy and planning a family. This resource explains potential risks and the support available before, during, and after pregnancy.
Work and career plans can sometimes be affected by living with ADPKD. This resource outlines key considerations, your rights, and the support available.
PKD may affect your ability to work, or mean you reduce your hours. This can have a knock-on effect on your finances. This page explains where to find financial advice, including about the benefits you might be entitled to.
Getting insurance can be a real problem for people affected by PKD. If you are looking for health, travel, life or critical illness insurance, we give you information on finding the best options.
Dialysis is a treatment that takes over some of the kidney’s functions when they can no longer work effectively. This resources gives an overview of dialysis and the types of dialysis avaiable.
This section explains more about haemodialysis, the most commonly used type of dialysis, where a machine filters your blood to remove waste and fluid.
This section explains more about peritoneal dialysis, a less commonly used type of dyalisis, where a special type of fluid is added into a space in your abdomen (tummy).
Medication plays a role in both slowing the progression of ADPKD and managing its symptoms. This resource explains the treatment available.
Some medicines may not be suitable for people with ADPKD. This resource highlights what to be cautious about and when to seek medical advice.
This section provides information about ADPKD (Autosomal Dominant Polycycstic Kidney Disease) including what it is and how it is diagnosed.
To find out more about the many ways we offer support for those affected by PKD, please see our Get Help page.
Learn the basics of ADPKD, including what causes the condition, how it affects the kidneys and other parts of the body, and what it may mean for you and your family.
This section provides information about how ADPKD affects children, including early signs, diagnosis, and emotional support. You’ll find practical resources to help parents and carers understand the condition and support their child with confidence.
To find out more about the many ways we offer support for those affected by PKD, please see our Get Help page.
Learn about the signs of ADPKD in children and how the condition is diagnosed, including when testing may be recommended. This resource helps you recognise early indicators and understand the testing process.
Learn how to talk to your child about ADPKD in an honest, age-appropriate way. This resource helps you support their understanding while building reassurance and trust.
Read more …Children with ADPKD