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0300 111 1234


0300 111 1234


Do you have some spare time and are interested in getting involved with the work of the PKD Charity?

There are lots of ways you can help us, whether you have only an hour to spare or more time.

Do you have lived experience of PKD?

If you have firsthand experience living with PKD and a passion for helping others or raising awareness of PKD, we want to hear from you!

We are seeking volunteers to share their experiences through peer support, community outreach events, social media and PKD education initiatives.

Host a local Support Group

PKD Support Groups usually take place in a cafe, and are attended by people affected by PKD who would like to meet others in a similar situation. The role of a Support Group Host is to help organise the venue, meet and greet people when they arrive, help get the conversation going and make people feel welcome, and signpost to the charities information and support services when appropriate. This role may be suitable for you if you;

  • Like meeting people
  • Have good listening skills

Help us with our Facebook Groups moderation

Our private Facebook groups provide a safe space for people affected by PKD in the UK to access 24/7 support. We need help moderating the groups to ensure they remain welcoming, respectful, and supportive environments.

Join our Lay Reading Panel

Throughout the year, we invite 'lay' readers to help us develop our information materials by reviewing and commenting on drafts. You can be a patient, parent, family member or carer.

Take part in research projects

We're often asked to help researchers with patient involvement and we're often in need of patients, parents and carers to comment on guidelines. If you're interested in providing your experiences or have a keen eye for reading documents, get in touch.

Volunteer at an event

We're always looking for volunteers who can help at our in-person educational events - helping with registration or greeting/chatting with people. We're also forming a 'PKD Cheering Team' of volunteers around the UK who can go to fundraising events and help inspire fundraisers to go the extra mile.

Where relevant, full training and out-of-pocket expenses are provided.

Charity trusteeship

We have no trustee vacancies at present.

Contact us

If you feel you can help with the above or anything else, please complete this short form and we'll get in touch with you asap.