What we do
We provide support to patients, carers and family members. We fund innovative research. We publish reliable information about ADPKD and ARPKD. We organise educational events.
We give practical and emotional support and advice to patients and their families from the moment they’re diagnosed, through treatment and beyond - on the phone, online and face-to-face.
We fund innovative research dedicated to improving understanding of polycystic kidney disease (PKD) which will lead to the development of new treatments to slow or prevent PKD progression, reduce pain, better manage other symptoms and improve quality of life.
We publish reliable, authoritative health information, written and reviewed by healthcare professionals, scientists and patients/carers on ADPKD and ARPKD. You can find out more about how we produce health information here.
We organise educational events online and in-person enabling patients and their families to hear from medical experts and, where possible, meet others with shared experiences.
Awareness of PKD is low - despite it being the most inherited kidney disease worldwide. We aim to build greater understanding amongst healthcare professionals, the government and the general public about PKD and its physical, emotional and financial burden on patients and families.