Polycystic Kidneys Debated in UK Parliament
On Tuesday 6 November, 2012, 'Polycystic Kidneys' were debated in the main chamber of the UK Parliament, the House of Commons.
Madeleine Moon MP (Lab, Bridgend), the chair of the All Party Parliamentary Group for Kidneys, had obtained the debate. She began by explaining what both ADPKD and ARPKD are and how they affect people who inherit these conditions.
During the debate, Mrs Moon called for the Government to commit more funding to PKD, for research and a patient registry, to develop guidelines including MRI to measure kidney volume and access to genetic testing.
Health Minister Anna Soubry responded that she could not make any promises, but she was willing to meet Mrs Moon and the PKD Charity to discuss further.
Here is link to a recording of the debate:
Democracy Live - Polycystic Kidneys debated in UK Parliament
Here is a link to the official Hansard written report of the debate - scroll down the page to the start at 6.46pm:
(Some of the slight verbal errors in the live debate have been corrected in the Hansard report)